Advocates for Children of New York published a new report in partnership with Citizens’ Committee for Children of New York (CCC) entitled Inégalités précoces : comment le sous-financement des interventions précoces laisse de côté les enfants de couleur à faible revenu, which shows that State disinvestment in New York’s Early Intervention program has caused major racial and socio-economic disparities in access to services.

The analysis is based on data from the New York City Department of Health and Mental Hygiene obtained through a Freedom of Information Law (FOIL) request. The data track children’s progress through the Early Intervention program—from referral, to evaluation, to eligibility determination, to service receipt—disaggregated by race and neighborhood from 2016-2018. As this report demonstrates, the data show that children under the age of three with developmental delays or disabilities are less likely to receive critical services that could help them reach their full potential if they live in low-income neighborhoods of color.

In 2018, one out of every four children found eligible for Early Intervention services in New York State had to wait longer than the 30-day legal deadline for services, losing valuable opportunities to address developmental delays at a time when their brains are rapidly developing. Access to Early Intervention evaluations and services also varies widely across communities in New York City. In the Bronx, for instance, only 61% of children found eligible for services received them by the 30-day legal deadline—less than in any other borough. Overall, children in low-income communities of color are the least likely to receive the Early Intervention evaluations for which they are referred and the Early Intervention services for which they are found eligible. For example, the neighborhoods where children referred for Early Intervention evaluations due to concerns with their development were least likely to receive evaluations were Hunts Point-Mott Haven, Crotona-Tremont, Central Harlem-Morningside Heights, High Bridge-Morisania, and East Harlem.

In order to increase children’s access to Early Intervention services, the report recommends that New York State should:

• Increase rates for Early Intervention evaluators, service providers and service coordinators by 10% to help address provider shortages.
• Fund a cost-study to assess and recommend changes to the methodology used to determine payment for evaluations, service provision, and service coordination.
• Adopt policies to ensure that commercial health insurance companies pay their fair share to help cover the cost of services.
• Conduct a statewide analysis of disparities in access to evaluations and services and develop a plan to address such disparities.

The report recommends that New York City should:

• Enact Intro. 1406-2019, requiring the city to issue annual public reports on the provision of evaluations and services so the public can hold the city and state accountable.
• Analyze the disparities and develop a plan to address them, including plans to recruit evaluators and providers for underserved neighborhoods, train service coordinators and providers in culturally responsive practices, and follow up with families whose children have not received evaluations or services.